Debbie's Place

A Patient's Point of View

Category: Traumatic Brain Injury (page 1 of 2)

Just a Little Compassion

 
Just a little bit of compassion
Can make another feel whole.
 
Just a little bit of compassion
Can help heal a hurting soul.
 
Just a little bit of compassion
Could be our daily life goal.
 
Just a little bit of compassion
Can help fill a hearts gaping hole.
 
Just a little bit of compassion
Can give someone else their start.
 
Just a little bit of compassion
Can bring joy to the saddest heart.
 
Just a little bit of compassion
Is something we can all impart.
 
Just a little bit of compassion
Can make another feel whole.
 
Just a little bit of compassion
Can help heal a hurting soul.
 
Just a little bit of compassion
Could be our daily life goal.
 
Just a little bit of compassion
Can help fill a hearts gaping hole.
 
Just a little bit of compassion
Can make another feel whole.

Do you Remember?

 
Do you remember wondering if you were somehow being punished for some terrible past deed?
Do you remember when survivor, and caregiver were only words in your vocabulary, rather than a way of life?
Do you remember all the energy and hours playing the “what could have been” game?
Do you remember the anger and the remorse?
Do you remember wanting to blame anyone, and everyone for this unforgivable twist in the course of your life?
Do you remember the pain and the uncertainty about what the future would hold?
Do you remember that with the passing of time, the disbelief gave way to realization?
Do you remember when the feelings of horror started turning
into feelings of reality?
Do you remember when the pain started being less acute, when taking a deep breath was no longer impossible or quite as painful?
Do you remember when the grief process allowed you to release some of the over-whelming frustration?
Do you remember when the anger started to finally begin to dissipate?
Do you remember that first cup of coffee that could be once again considered enjoyable and yes, even relaxing?
Do you remember when you first started noticing the beauty of the rainbow after a gentle rain shower?
Do you remember when you first started to notice the beauty in the change of seasons?
Do you remember the first time you noticed that the birds were still singing from the tree-tops?
Do you remember the first time you heard a sad…heartbreaking story and said to yourself “But by the grace of God there go I”, It could be worse?
Did you know that this means that your heart is finally on the
path to healing, recovery and acceptance?

How Do We?

 

How do we adequately put into words what if feels like to have ourselves and our life plans instantly interrupted and life as we once knew it ended abruptly?

How do we adequately put into words what it felt like to be thrown into the traumatic and surreal world of ICU, life support, rehabilitation and limitations beyond what we or our families could possibly comprehend?

How do many of us adequately put into words what if feels like to have a brain injury and go undiagnosed and not have a clue what was wrong with us?

How do we adequately put into words that far too many of us thought our brain problems meant we had gone crazy?

How do we learn to put these horrendous experiences in some kind of perspective and understanding if we can’t find someone to talk to that we think cares about how we really do feel?

 

Dementia and Cannabis

Dear friends, this is the 4th year of my dementia and cannabis trial. I have shared with you before that measuring improved cognition is a REAL challenge, There are many types of neuro-degeneration caused by several different diseases and disorders. With my severe brain trauma I knew my risk for dementia was high. Now everyones symptoms will be different but I was 57 and almost instantaneously lost my ability to identify music with any person, place or decade in my life. As a brain injury survivor I had depended on music to do just that for over two decades! Just yesterday I started remembering some of my own all time favorite artists and started listening to them on youtube. I remembered all on my own and with my own long term memory! What a victory and now I have new and enhanced music enjoyment! I use THCA (raw cannabis) twice a day ground and put in capsules. 
 

Cannabis and Severe Insomnia

Dear friends, getting control over my severe insomnia was a huge process. A review of sleep disorder studies and surveys suggest that sleep disorders are three times more common in TBI patients than in the general population. Nearly 60% of all people with TBI experience long-term difficulties with sleep. TBI can interfere with the “internal clock” in the brain that controls when we sleep and wake every day. If injured, the brain may not be able to tell the body to fall asleep or wake up. There are chemicals in our body that help us to sleep. An injury can change the way that these chemicals affect the body. When I first started cannabis I was not going to bed a single night of the week anymore. I had gone ten days and ten nights and eleven days and eleven nights. Absolutely nothing could put me to sleep including various prescriptions of sleeping pills that kept failing. When I started using cannabis I was passing out every 72 hours any place I happened to finally fall asleep. I was directed to take all my extra trim and age it in the dark for three months or longer and convert the THC to CBN. I then stated medicating though out the day with my cannabis mixed with the CBN trim. It was actually the first thing that ever slowed my brain and body down. I vaped the CBN rich leaves all day and was able to finally start sleeping nightly on this combination. It did take time and I suspect there was a great deal of brain regulation healing that had to take place. When I lay down each night today, thanks to cannabis and time to regulate my brain, I now know that sleep is finally going to come each and every night!

Needless Suffering

A quarter century ago, life as I knew it, came to a screeching halt.
An unexpected almost fatal injury left my brain and body to atrophy.
I couldn’t come back to live among the living no matter how hard I tried.
I lost my digestive organs and chronic wasting took a hold of me.
I was not eligible for surgery so a neck brace stayed full time on me.
I was left with years of life threatening seizures daily hurting me badly.
I tried all the medicines, and other treatments eligible to help or treat me.
I tried hard yet I failed and was not eligible for any of the brain surgeries.
I am sure feeling a lot like the old me the one that I lost access to 25 years ago.
Medical cannabis took those life threatening seizures finally away from me.
Medical cannabis makes up for a dozen prescription medicines taken daily.
Medical cannabis makes up for a helmet, neck brace and diapers years worn by me
Medical cannabis taught me that the brain and many other organs can heal these catastrophes.
Medical cannabis is what taught me how many have suffered and died so very needlessly.
Medical cannabis enabled me to write so this neurology news can be shared across the sea.
Medical cannabis taught me that treatment without access to the miracle of cannabis is pure cruelty.
Medical cannabis was the miracle I desperately searched for and I am grateful my family and I no longer
have to be medical refugees.

The Gift of THC for Patients

Dear friends, I get so frustrated at all the patients that propaganda has negatively impacted when it comes to the THC “high”. As a patient very used to horrible side effects please, please give me medical cannabis with THC! According to the DEA with THC I can and do FEEL the following: “THC causes a user to feel euphoric — or ‘high’ — by acting in the brain’s reward system, areas of the brain that respond to stimuli! THC activates the reward system by stimulating brain cells to release the chemical dopamine.” Dopamine is a wonderful thing it keeps us motivated and happy! I am an epilepsy patient and CBD alone is not enough for me! I do greatly enjoy THC and that is something I can NOT say about any side effect from pharmaceutical medicines! Please look deeper than the propaganda and I am talking about cannabis treatment for children also! Believe me most would agree that THC is wonderful for most patients! There is no comparison patients would greatly prefer to feel happy than experience horrible side effects!

Clonazapam Detox Update

Dear friends, I have now been detoxing off my last pharmaceutical medicine Clonazapam (Klonopin). Two years ago I tried and failed to come off this medication. I ran into trouble trying to reduce my last 2 mg. I am thrilled to share that I have successfully made the cut from 2 mg to 1 mg for the very first time! I had two days of mild breakthrough seizures and that was all! All my other withdrawal symptoms were much milder than any detox in my medical history! I had been told by my doctors that the long history of Klonopin use had changed the structure of my brain. I was told I would never be able to successfully come off of this medicine! I am thankful to share that medical cannabis has made this last detox possible! This makes my pharmaceutical medication reduction from 44 per pills to 1 a day in 6 years and counting down! Miracles really do happen with cannabis use!

Did You Notice?

Did you notice,
it feels like you walk alone?
Did you notice,
the lack of family and friend support shown?
Did you notice,
when others seemed to stop calling on the phone?
Did you notice,
this disappointment made you want to cry or groan?
Did you notice,
how many ways compassion could have been shown?
Did you notice,
when others use a different or demeaning tone?
Did you notice,
a lack of feeling like you are turning to stone?
Did you notice,
when you were ready to move forward even if alone?
Did you notice,
we learned to protect ourselves from hurt and fear of the unknown?

 

Medical Cannabis

You have helped keep me sane.
You have helped manage my pain.
You have helped me to finally regain.
You have helped take me in from the rain.
You are the kindest medicine anyone can attain.
You are the first medicine that is healing my brain.
You are helping me feel again and become much less lame.
You have helped me to feel less embarrassment and shame.
You have helped me believe my brain can continue to retrain.
You are my brightest rainbow following decades of unimaginable strain.

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