Debbie's Place

A Patient's Point of View

Category: Brain Injury Research (page 1 of 2)

Cannabis and Stroke Healing

Dear friends, I had a hemorrhagic stroke two years ago last month and I survived. I already had a lot of brain damage and due to my epilepsy I was not eligible for the stroke shot. I had been diagnosed with a 90% brain vessel blockage in 2008 that was inoperable. I started on cannabis in 2010. I knew I was racing against the clock. I did have the brain bleed in 2015. The stroke specifically negatively impacted my lungs, heart, kidneys, balance and speech. Against the odds and with no explanation other than cannabis I had my fasted brain trauma healing yet! Cannabis absolutely does help in brain healing and gives HOPE to the hopeless!

Cannabis and Severe Insomnia

Dear friends, getting control over my severe insomnia was a huge process. A review of sleep disorder studies and surveys suggest that sleep disorders are three times more common in TBI patients than in the general population. Nearly 60% of all people with TBI experience long-term difficulties with sleep. TBI can interfere with the “internal clock” in the brain that controls when we sleep and wake every day. If injured, the brain may not be able to tell the body to fall asleep or wake up. There are chemicals in our body that help us to sleep. An injury can change the way that these chemicals affect the body. When I first started cannabis I was not going to bed a single night of the week anymore. I had gone ten days and ten nights and eleven days and eleven nights. Absolutely nothing could put me to sleep including various prescriptions of sleeping pills that kept failing. When I started using cannabis I was passing out every 72 hours any place I happened to finally fall asleep. I was directed to take all my extra trim and age it in the dark for three months or longer and convert the THC to CBN. I then stated medicating though out the day with my cannabis mixed with the CBN trim. It was actually the first thing that ever slowed my brain and body down. I vaped the CBN rich leaves all day and was able to finally start sleeping nightly on this combination. It did take time and I suspect there was a great deal of brain regulation healing that had to take place. When I lay down each night today, thanks to cannabis and time to regulate my brain, I now know that sleep is finally going to come each and every night!

Needless Suffering

A quarter century ago, life as I knew it, came to a screeching halt.
An unexpected almost fatal injury left my brain and body to atrophy.
I couldn’t come back to live among the living no matter how hard I tried.
I lost my digestive organs and chronic wasting took a hold of me.
I was not eligible for surgery so a neck brace stayed full time on me.
I was left with years of life threatening seizures daily hurting me badly.
I tried all the medicines, and other treatments eligible to help or treat me.
I tried hard yet I failed and was not eligible for any of the brain surgeries.
I am sure feeling a lot like the old me the one that I lost access to 25 years ago.
Medical cannabis took those life threatening seizures finally away from me.
Medical cannabis makes up for a dozen prescription medicines taken daily.
Medical cannabis makes up for a helmet, neck brace and diapers years worn by me
Medical cannabis taught me that the brain and many other organs can heal these catastrophes.
Medical cannabis is what taught me how many have suffered and died so very needlessly.
Medical cannabis enabled me to write so this neurology news can be shared across the sea.
Medical cannabis taught me that treatment without access to the miracle of cannabis is pure cruelty.
Medical cannabis was the miracle I desperately searched for and I am grateful my family and I no longer
have to be medical refugees.

Clonazapam Detox Update

Dear friends, I have now been detoxing off my last pharmaceutical medicine Clonazapam (Klonopin). Two years ago I tried and failed to come off this medication. I ran into trouble trying to reduce my last 2 mg. I am thrilled to share that I have successfully made the cut from 2 mg to 1 mg for the very first time! I had two days of mild breakthrough seizures and that was all! All my other withdrawal symptoms were much milder than any detox in my medical history! I had been told by my doctors that the long history of Klonopin use had changed the structure of my brain. I was told I would never be able to successfully come off of this medicine! I am thankful to share that medical cannabis has made this last detox possible! This makes my pharmaceutical medication reduction from 44 per pills to 1 a day in 6 years and counting down! Miracles really do happen with cannabis use!

Ode to the Brain Monster

 

Thanks to medical cannabis I no longer live the gruesome tale of the dreaded brain monster, my term for uncontrolled epilepsy. The brain monster rides piggyback in the recesses of a few chosen brains. It is unclear in most cases how he makes his selection, but the result is always the same. The brain monster is comparable to the worst nightmare of a sleeping child. His size is a little unclear, but he seems massive. His shape is a little hazy, but over-whelming is the word that came to mind. His face, though never very clearly seen by anyone, is most often described as cruel and wearing a smirk across his greedy lips. The brain monster is likened to a shadow because he goes with his chosen everywhere they go.

The brain monster used to be present every time I lay down to go to sleep and was still present at the break of each new day. He used to attend all my social functions and was also present during all my peaceful moments of solitude. He was once ever present and his existence could never be totally ignored. Thanks to medical cannabis I can ignore his existence and go days without giving him a second thought!

Once the brain monster comes to live within a brain, he is stubborn, he resists strongly all attempts at evacuation. Some call him a symptom, some call him a curse. Some call him the brain monster. The main treatment for the brain monster is to somehow keep him calm and sleeping. While he is lying dormant and undisturbed he is much less likely to cause pain and suffering to those of us he has inhabited. It is said that he is to be tip-toed around, cautiously, respectfully, suspiciously. It is sometimes very difficult to find a medicine that will keep him under control.

When he is out of control there are no words quite descriptive enough and no analogy that can exemplify the powerful range of emotions and damage he does to those of us he has inhabited. It is said that the brain monster can be felt stretching and yawning as he starts to awaken. As the brain monster starts to stir, the brain sends signals of warning to the rest of the body. The warning may be felt as the stirring of fear, or may be felt as just a slight tingling or numbness on one side of the body. The warning may be a drop in level of consciousness, or just a brief staring spell. Whatever the warning take care and heed, because it means the brain monster is no longer asleep. Some call this warning an aura, others refer to it as their personal gateway to hell on earth. This monster sometimes becomes all to familiar because he wakes up time and time again. His destruction is felt by far too many. He attacks little precious children, he causes parents many a torturous sleep-less night. He is responsible for immeasurable loss of independence. He has taken many a driver’s license away. The brain monster has caused many qualified workers loss of meaningful employment, loss of confidence, loss, loss, loss. Beware of the brain monster he does not discriminate. I learned that he can waltz in unexpected without warning and without a known cause anytime and inhabit anyone.

I finally experienced that with multiple seizures types resistant to any type of treatment, medical cannabis was what gave me my first and only relief and reprieve from the ominous threat of the brain monster!

 

BI Awareness and the Techno Age

Dear friends, I have been sharing brain injury
awareness for over two decades. If we really
look around and listen to fellow survivors we
should all eventually realize one humbling
truth! We really live among a world of miracles!
We are an amazing and miraculous brother and
sisterhood. Please give yourself credit for what
you are truly surviving! My first BI awareness
and education website was twenty years ago.
I have been waiting for technology to catch up
with what should finally make brain injury easily
for ALL of society to understand! There really is
NO excuse for this technology dependent society
not to understand and feel compassion for brain
injury survivors. In the height of technology there
is no excuse for people not to comprehend the
importance of our mysterious and amazing BRAINS!
It is our bodies only COMPUTER! Our brain injury put
insurmountable difficulties on our precious computers!
It makes me smile when I think about all the people that
FREAK out if any of their computerized gadgets get a glitch!
They panic if they hear it can’t be fixed by tomorrow! Imagine
if they realized they may have to deal with these glitches long term.

This is the best BI analogy I have been able to come up with in
27 years of trying hard!

All In a Brain Injury

We have memory problems.
We have concentration difficulties.
We have sensory deficits like blurred vision,
ringing in the ears or a bad taste in our mouths.

We can have loss of sensation and feeling.
We can have headaches.
Many of us have loss of balance.
We can have light sensitivity.
We can also have noise sensitivity.
We tend to have mood changes.
We tend to become depressed or anxious.

We may have chronic fatigue.
We may have sleep disorders.
We may be confused.
We may have speech and hearing deficits.
We may lose judgement and reasoning abilities.
We may stay angry a very long time.

We are usually not sure who or what we are angry about.
The truth is we do not know ourselves anymore!
We are usually the last to know or realize the extent of our injuries.
Many of us also have PTSD.
Others of us have seizures.
Please, if you see our symptoms, help get us the help we need.

We need support, encouragement and hope.
We need faith that we
can overcome our many deficits.
We need immense understanding as we lost “ourselves.”
It is difficult to again find our way.
Our futures are full of unknowns and extremely hard work.

We are like a brand new person, starting all over again.
None of us wanted to start all over again.
We may be resistant and we may deny, deny and deny.
We need nurturing and we need guidance to again find our way.
We are unique in every way.
What the brain is able to again do
will astound even those that do not believe in miracles.
We are survivors in a special league.

Many of us had experienced loss of family and loved ones prior to brain injury.
These loses were heart breaking and hard to accept.
They did not prepare us for the total and complete loss we have felt
as a result of our “loss of self!”

We are brothers and sisters
as a result of the uniqueness of our loss.
We believe we are the only ones
that can truly understand the magnitude of our loss.
Together we are stronger,
and we learn tips that help us move forward.

Please be kind and patient with us.
If you have not experienced loss of self
it is very hard to comprehend.
Please just sympathize and empathize with our loss.

We are a group that has a tendency to far surpass anyone’s expectations or dreams.
We are the “ultimate survivors” in every sense of our existence.
We were chosen and are all an honor and a blessing to know!

Date With Fate

Fate has no respect for the golden rule.
Fate can be quick, quiet and quite cruel.
We did not get to choose the time or date.
We didn’t get a warning about our date with fate.
We were all negatively impacted by the fate gate.
We never imagined loss could be quite this great.
We did not choose any of this extra harsh life weight.
Fate does not discriminate it gets many all can be bait.
Fate can also be a new beginning or a brand new dawn.
We don’t have to let fate control us like we are its pawn.
We can make a choice to reach out and help others that bled.
Fate touched our life and many of us know we should be dead.
Fate gave us a chance to be thankful for the little things instead.
Fate gave us another chance to live, laugh, love and share daily bread.

Debbie Wilson

Cannabis and Brain Injury

Dear friends, due to life threatening seizures I was literally MIA for 21 years. I had multiple traumatic brain injuries in that same time frame. It was medical cannabis that finally controlled my life threatening epilepsy. It is medical cannabis that is helping me IMPROVE with dementia which is suspected CTE! I so wish I had known the medical benefits of this healing plant a few decades ago! I found out about the healing benefits of this plant 6 years ago. It has also saved my LIFE the last 6 years! I believe that everyone deserves HOPE! I was not given hope by anyone, any longer. I had run out of time according to western medicine. When I was able to figure out the benefits and access medical cannabis for myself, I have wanted to shout it from the roof tops! Medical cannabis has given me a quality of life, as a chronically ill patient, I could have never imagined. This plant is the miracle many people and their families are currently praying for! Together we can share this important message far and wide and also with those closest to us, which many times are the very hardest!

 

Ode to the Brain Monster

Thanks to medical cannabis I no longer live the gruesome tale of the dreaded brain monster, my term for uncontrolled epilepsy. The brain monster rides piggyback in the recesses of a few chosen brains. It is unclear in most cases how he makes his selection, but the result is always the same. The brain monster is comparable to the worst nightmare of a sleeping child. His size is a little unclear, but he seems massive. His shape is a little hazy, but over-whelming is the word that came to mind. His face, though never very clearly seen by anyone, is most often described as cruel and wearing a smirk across his greedy lips. The brain monster is likened to a shadow because he goes with his chosen everywhere they go.

The brain monster used to be present every time I lay down to go to sleep and was still present at the break of each new day. He used to attend all my social functions and was also present during all my peaceful moments of solitude. He was once ever present and his existence could never be totally ignored. Thanks to medical cannabis I can ignore his existence and go days without giving him a second thought!

Once the brain monster comes to live within a brain, he is stubborn, he resists strongly all attempts at evacuation. Some call him a symptom, some call him a curse. Some call him the brain monster. The main treatment for the brain monster is to somehow keep him calm and sleeping. While he is lying dormant and undisturbed he is much less likely to cause pain and suffering to those of us he has inhabited. It is said that he is to be tip-toed around, cautiously, respectfully, suspiciously. It is sometimes very difficult to find a medicine that will keep him under control.

When he is out of control there are no words quite descriptive enough and no analogy that can exemplify the powerful range of emotions and damage he does to those of us he has inhabited. It is said that the brain monster can be felt stretching and yawning as he starts to awaken. As the brain monster starts to stir, the brain sends signals of warning to the rest of the body. The warning may be felt as the stirring of fear, or may be felt as just a slight tingling or numbness on one side of the body. The warning may be a drop in level of consciousness, or just a brief staring spell. Whatever the warning take care and heed, because it means the brain monster is no longer asleep. Some call this warning an aura, others refer to it as their personal gateway to hell on earth. This monster sometimes becomes all to familiar because he wakes up time and time again. His destruction is felt by far too many. He attacks little precious children, he causes parents many a torturous sleep-less night. He is responsible for immeasurable loss of independence. He has taken many a driver’s license away. The brain monster has caused many qualified workers loss of meaningful employment, loss of confidence, loss, loss, loss. Beware of the brain monster he does not discriminate. I learned that he can waltz in unexpected without warning and without a known cause anytime and inhabit anyone.

I finally experienced that even with multiple seizures types resistant to any type of treatment, medical cannabis was what gave me my first and only relief from the ominous threat of the brain monster!

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