Debbie's Place

A Patient's Point of View

Month: July 2016

Seizure Relief

 

I can feel myself leaving,
I just never know exactly where I am to go.
The seizure monster takes me on an unwanted furlough,
and apparently no one else is allowed to follow.
I can feel myself leaving,
no matter how hard I try to stay tough and macho.
The seizure monster catches me like a scared little doe.
I can feel myself leaving,
I can feel myself going deep down and below.
I can feel that old familiar feeling of sorrow.
I can feel myself getting very, very slow,
this is when I can identify I am caught in the seizure crossbow.
I can feel myself leaving.
I feel my breathe as it gets more and more shallow.
I feel seizure relief once I feel your presence and my head on a pillow.

 

All In a Brain Injury

We have memory problems.
We have concentration difficulties.
We have sensory deficits like blurred vision,
ringing in the ears or a bad taste in our mouths.

We can have loss of sensation and feeling.
We can have headaches.
Many of us have loss of balance.
We can have light sensitivity.
We can also have noise sensitivity.
We tend to have mood changes.
We tend to become depressed or anxious.

We may have chronic fatigue.
We may have sleep disorders.
We may be confused.
We may have speech and hearing deficits.
We may lose judgement and reasoning abilities.
We may stay angry a very long time.

We are usually not sure who or what we are angry about.
The truth is we do not know ourselves anymore!
We are usually the last to know or realize the extent of our injuries.
Many of us also have PTSD.
Others of us have seizures.
Please, if you see our symptoms, help get us the help we need.

We need support, encouragement and hope.
We need faith that we
can overcome our many deficits.
We need immense understanding as we lost “ourselves.”
It is difficult to again find our way.
Our futures are full of unknowns and extremely hard work.

We are like a brand new person, starting all over again.
None of us wanted to start all over again.
We may be resistant and we may deny, deny and deny.
We need nurturing and we need guidance to again find our way.
We are unique in every way.
What the brain is able to again do
will astound even those that do not believe in miracles.
We are survivors in a special league.

Many of us had experienced loss of family and loved ones prior to brain injury.
These loses were heart breaking and hard to accept.
They did not prepare us for the total and complete loss we have felt
as a result of our “loss of self!”

We are brothers and sisters
as a result of the uniqueness of our loss.
We believe we are the only ones
that can truly understand the magnitude of our loss.
Together we are stronger,
and we learn tips that help us move forward.

Please be kind and patient with us.
If you have not experienced loss of self
it is very hard to comprehend.
Please just sympathize and empathize with our loss.

We are a group that has a tendency to far surpass anyone’s expectations or dreams.
We are the “ultimate survivors” in every sense of our existence.
We were chosen and are all an honor and a blessing to know!

Date With Fate

Fate has no respect for the golden rule.
Fate can be quick, quiet and quite cruel.
We did not get to choose the time or date.
We didn’t get a warning about our date with fate.
We were all negatively impacted by the fate gate.
We never imagined loss could be quite this great.
We did not choose any of this extra harsh life weight.
Fate does not discriminate it gets many all can be bait.
Fate can also be a new beginning or a brand new dawn.
We don’t have to let fate control us like we are its pawn.
We can make a choice to reach out and help others that bled.
Fate touched our life and many of us know we should be dead.
Fate gave us a chance to be thankful for the little things instead.
Fate gave us another chance to live, laugh, love and share daily bread.

Debbie Wilson

We Can Choose

We can choose to just sit and stare,
We can choose to wallow in our despair.
We can choose to focus on how life isn’t fair,
We can choose to isolate and forever live in solitaire.
We can also choose to be kind and fair,
We can choose happiness if we were to dare.
We can choose to be a friend and reach out and care,
We can also choose to again breathe in gulps of fresh air.
We can also choose to find contentment again, somewhere.
We can choose for joy to be continual rather than just rare,
We can always choose to live life to our fullest if we just dare.
We can also choose to be kind and fair,
We can choose happiness if we were to dare.
We can choose to be a friend and reach out and care,
We can also choose to again breathe in gulps of fresh air.
We can also choose to find contentment again, somewhere.
We can choose for joy to be continual rather than just rare,
We can always choose to live life to our fullest if we just dare.

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